Women Caring for Husbands Living with Parkinson’s Disease: A Phenomenological Study Protocol
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Fecha
2022-04-20Autor(es)
White, Dawn R.
Palmieri, Patrick Albert
Metadatos
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“Parkinson’s disease (PD) is an emerging pandemic caused by aging, longevity, and industrialization. Most people diagnosed with PD initially experience mild symptoms, but over time
the symptoms become debilitating. Given their intensive care requirement, most married people
living with PD receive care from their spouses; most are female caregivers. Because caregiving is
hard work with long hours, caregivers experience stress, fatigue, and depression, often leading to
exhaustion and burnout. The purpose of this descriptive phenomenological study is to understand
the lived experience of women caregivers of husbands living with PD. As part of this study protocol,
women caring at home for their husbands diagnosed with PD will be purposely recruited from the
Colorado Parkinson Foundation. Semi-structured interviews will be conducted by Zoom© until
data saturation is achieved. Colaizzi’s seven-step process will be used to analyze the data in Atlas.ti.
Strategies have been incorporated into the study protocol to maximize trustworthiness and to insure
methodological rigor. The study will be reported using recommendations from the Standards for
Reporting Qualitative Research and the Consolidated Criteria for Reporting Qualitative Research.
Findings from this study may guide intervention development to improve the caregiving experience
and to inform clinical practice guidelines for health care professionals“
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- Web of Science (WOS) [236]